ReCARDO: Using Real-World Data to Derive Common Data Elements for Alzheimer’s Disease and AD-Related Dementias Research Through Ontological Innovation

NIA-U24AG098157

ReCARDO Investigators

Investigators Directory
Qian Xiao Alex Cheng Jake Chen Amy Franklin Jing Su
About Development of CDEs for AD/ADRD (AD-CDEs) cover seven designated domains Development, refinement, adoption of AD-CDEs through collaboration and validation Resource sharing and dissemination Administrative support key functions
    Steps include:
  1. Identify research questions, CDE use cases, CDE gaps and requirements
  2. Create an AD-CDE Metadata Ecosystem (CDE-Engine) and develop initial versions of AD-CDEs in the seven identified areas in RFA-AG-25-001 by leveraging advanced informatics solutions and AI/ML/NLP
  3. Evaluate, refine, and expand CDEs within the ReCARDO Research Network (RRN)

Work Streams

1. CDE development & CDE knowledge graph

Leads & Co-Leads: Licong Cui, Alex Cheng

2. CDE extraction from RWD

Leads & Co-Leads: Hongfang Liu, Jennifer St Sauver

3. Data, metadata & resource ecosystems

Leads & Co-Leads: GQ Zhang, Jake Chen

4. AI/ML/NLP & computational phenotyping

Leads & Co-Leads: Yonghui Wu, Hongfang Liu

5. Research question, use cases, pilots

Leads & Co-Leads: Zoe Arvanitakis, Amy Franklin

6. Genetics, imaging, biomarkers & big data

Leads & Co-Leads: Degui Zhi, Dennis Lal

7. Reproducibility & evaluation

Leads & Co-Leads: Yong Chen, Ronald Petersen

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Current meetings

ReCARDO Annual Meeting

ReCARDO Annual Meeting

Oct 5 (Mon), 2026
Location: NIH Fishers Lane Facility - 5601 Fishers Lane, Rockville, MD 20852, United States
The University of Texas Systemwide Brain Research Summit 2026

The University of Texas Systemwide Brain Research Summit 2026

Nov 5 (Thu) - Nov 6 (Fri), 2026
Location: Austin, TX, USA
AMIA 2026 Annual Symposium

AMIA 2026 Annual Symposium

Nov 7 (Sat) - Nov 11 (Wed), 2026
Location: Dallas, TX
All Meetings