ReCARDO: Using Real-World Data to Derive Common Data Elements for Alzheimer’s Disease and AD-Related Dementias Research Through Ontological Innovation
ReCARDO Investigators
Key functions include:
A. Operate a Steering Committee (SC) and an External Advisory Panel (EAP)
B. Organize the Annual National Data Harmonization and CDE User Meeting and committee meetings, workshops and retreats
C. Manage the pilot study award lifecycle
D. Advance RRN innovation capacity development with end user support for the CDE-Engine and CDE-Data
E. Operate RRN with a governance framework following established principles and best practices
Work Streams
1. CDE development & CDE knowledge graph
Leads & Co-Leads: Licong Cui, Alex Cheng
2. CDE extraction from RWD
Leads & Co-Leads: Hongfang Liu, Jennifer St Sauver
3. Data, metadata & resource ecosystems
Leads & Co-Leads: GQ Zhang, Jake Chen
4. AI/ML/NLP & computational phenotyping
Leads & Co-Leads: Yonghui Wu, Hongfang Liu
5. Research question, use cases, pilots
Leads & Co-Leads: Zoe Arvanitakis, Amy Franklin
6. Genetics, imaging, biomarkers & big data
Leads & Co-Leads: Degui Zhi, Dennis Lal
7. Reproducibility & evaluation
Leads & Co-Leads: Yong Chen, Ronald Petersen
Current meetings
ReCARDO Annual Meeting
Oct 5 (Mon), 2026
Location: NIH Fishers Lane Facility - 5601 Fishers Lane, Rockville, MD 20852, United States
The University of Texas Systemwide Brain Research Summit 2026
Nov 5 (Thu) - Nov 6 (Fri), 2026
Location: Austin, TX, USA
AMIA 2026 Annual Symposium
Nov 7 (Sat) - Nov 11 (Wed), 2026
Location: Dallas, TX